Thursday, June 4, 2009

Some good news and not so good news.....

Hi All, well let's start with the not so good news first.... We met with the cardiology team today and it seems that there is an abnormality on my cardiac MRI. The concern here is whether or not my heart will be strong enough for transplant. Evidently,this was not an issue three months ago, but with my disease progressing there is a concern now. The team is going to meet with Dr. Burt and evaluate the situation. I told them that I am fully aware of the risk involved and i am ready and willing to take it....if you know me well enough, you all know that I am a risk taker and at this point this is my only chance... I am going for it!
The good news is... All tests are finished and we are leaving tomorrow morning! I miss my kids and I can't wait to get home, and yes, I even miss Mylo, our beagle.. I would personally like to thank everyone for your posts to this blog, your emails and the many phone calls. Everyone has been so supportive and it means a great deal to both Donna and myself... see you all back in Jersey!

National Foundation for Transplants

Mike Adams - Flemington, NJ
Adams, Mike.JPG

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Transplant Type - Bone Marrow

Mike, a husband and father of two, first suspected Lyme disease was the cause of swelling and pain in his hand until further testing showed he suffers from Systemic Scleroderma, a rare autoimmune disease causing the tissues of various organs to become very hard and eventually stop functioning.

Doctors have told Mike a bone marrow transplant is his only hope for a second chance at life. Mike was once very active, spending time with his two children, jogging five miles per day and playing softball as often as possible. However, his condition has forced him to stop the activities he once loved. An active coach in local Readington Township athletics, Mike has coached his children's athletic teams for 15 years. He is thankful that he has still been able to coach and hopes he remains healthy enough to continue helping. Mike looks forward to playing baseball with his son once again and walking his daughter down the aisle someday, and he hopes a lifesaving bone marrow transplant will allow him to do those things.

A bone marrow transplant costs approximately $300,000. And that's only the beginning. Mike faces significant medical expenses related to his transplant. Because Mike's insurance will not cover a large portion of the transplant costs, his hospital has estimated that Mike will be responsible for approximately $170,000 out of pocket.

You can help! To make a donation to NFT in Mike's honor, click the link below his photo. If you'd prefer to send your gift by mail, please send it to the NFT New Jersey Bone Marrow Fund, 5350 Poplar Avenue, Suite 430, Memphis, TN 38119. Be sure to write "in honor of Mike Adams" in the memo line.

Thank you for your generosity!

Patient Health Institute: Northwestern Memorial Hospital