Amanda's graduation from TCNJ

A very special moment with Nanny....
Me, my wife Donna, my son Michal, my daughter Amanda and mom
Congratulations Amanda!

A very Proud moment in my life....

Friday was the College graduation of my daughter, Amanda. She attended the College of New jersey. She graduated in the top 1/3 of her class! It is so hard to believe how quicky these 4 years have gone by. Other than witnessing her birth, this was the proudest moment of my life and I am so thankful that I was able to be there. It was certainly a day filled with Adams pride!!! I want to mention a very special person in my life and that is my mother in-law. Those of you who know her know how ill she has been over the years and yet she manages to always bounce back. Her reason for this, she tells me, is the love of her family - Even though she is in a rehab recovering from yet another illness, she managed to make it to the ceremony!! She is an amazing woman. I draw a lot of strength from her.
My Dr. started me on a new medication it is called Tracleer. This is supposed to help preserve my heart. My skin is starting to itch like crazy, but I don't think it's from the medication. I think my body is getting tighter. Donna bought a new cream that seems to be helping a little. Anyone have a back scratcher??

New News!

Today we heard from our insurance case manager as well as from Kristen, our Nurse coordinator at Northwestern( Let me just mention that Kristen is wonderful). It seems that our insurance company wants Northwestern to conduct further testing (exactly 12 more tests). They were very specific about the tests being performed by Northwestern only. Kristen told us that they usually either approve or deny payment for the transplant after the first 3 tests which i had already completed. What does this mean? We are headed back to Chicago for 5 more days of testing which means a further delay in my treatment. They may be slowing me down, but there is no stopping me- I'm a man on a mission I have a lot of living to do!!

Rainy Sunday....

Well, our soccer game was cancelled today because of the rain. This weather is really bad for my joints. The pain is sometimes unbearable. On a lighter note, our good friends Penny and Billy paid us a visit yesterday. We haven't seen them in a while and it was just so great to finally get together. Billy has now become a professional ATV rider! Penny has known Donna for almost 27 years now so I would have to say she is more like family. She and I could just sit for hours and just laugh and banter. Hopefully we will get in one more visit before I leave for Chicago. No news yet.....

Don't call us, we'll call you....

Hello all,
Well, I finally received a phone call from my financial liason ( after many unsuccessful phone calls instantly transferring us immediately to voice mail). Basically, we are still in negotiations with our insurance company. Dr. Burt has to submit further test results to them and i will possibly have to return to the hospital for further testing. Lucky me.
I came home this afternoon to find my backyard had been landscaped! John and Susan came over and worked in my yard all afternoon. It has been difficult for me to hold garden tools with my hands and cutting down shrubbery is almost impossible. I don't know how to thank them enough!
I gained two pounds this week, now i only hope i can keep this up.

good game, good food, great friends....

Well, Sunday was our first soccer game of the season and we were defeated 6-1. Not a good start to the season, but these things do happen. My team showed a lot of heart, it's only the first game. I have a good team. Mikey played inside on offense and he did a great job.
I felt exhausted as usual and it seems like it's increasingly getting worse as the days go by, but I'm holding strong. Susan and John payed us a visit. It's always great to see them. They truly know how to make you forget your troubles. I was feeling pretty depressed about my condition and they really boosted my spirits ( as I often do for John. I always tell him there's no charge for my therapy!)
Still waiting to hear from the hospital. hopefully Donna will give them a call on Friday.

coaching Readington baseball 2008 season