I loveeeee black jelly beans

Easter was a great day. It was filled with family and lots of good food. This was the first year that I couldn't participate in our annual Easter egg hunt because I wasn't feeling up to it. My children are extremely competitive and were actually relieved that I would not be participating (I always win), but wait until next year watch out. The highlight of the day for Amanda was tossing black jelly beans at me while I scooped them up and ate them like a chipmunk. mmm those black jelly beans. We are still waiting to hear from the financial liaison. We received an e-mail from the hospital with her name but were told not to contact her for at least two weeks. She probably wouldn't know anything yet anyway. Mikey and I are getting extremely excited for spring soccer season to start. Practices have been a challenge for me. I come home exhausted. Our first game is approaching rapidly and it looks like we have a great team this year.

April get warm!

Today was a good day. Donna made about a million phone calls and finally settled on a condo,the Oakwood apartments, a block from the hospital. We still haven't heard from our financial liaison, who will be fighting our insurance company for some sort of payment. We are supposed to know something in the next few weeks. My daughter's friend, our neighbor, started fundraising at her college, West Chester University. I was so humbled when she gave me an envelope donated by the students. Even though its April its still really cold here in Jersey, and it snowed today. It makes it very difficult for me to function fully with my hands because of my raynauds. Hopefully we will have nice weather for Easter.

My first post

My family and I received wonderful news this past week that I am a candidate to undergo an autologous stem cell transplant. As I prepare for this journey to Chicago, I invite everyone to join me through this blog site as I kick Scleroderma in the butt! I am a fighter and I never give up.