what a hot day today!! this is the first time that i have found it very difficult to breath while working. I was fine in the air conditioning but the minute i stepped outside i lost my breath from the heat and humidity. i am totally exhausted.
Within the next few weeks i will finally be meeting with the lung transplant team at Beth Israel. My lung cd's have finally been received!
I have been trying to keep up with things at home. I have been pushing myself to the max. What took me only 2 hours to cut my lawn now takes about 6 because i try to rest in between. Mikey has been an unbelievable help to me. He is my little right hand man and i have been trying to teach him little things around the house. He has even been there to rescue me a few times during my choking spells. I'm not certain if i mentioned this earlier but the scleroderma has affected my swallowing and everytime i eat i have to keep something to drink close by otherwise i will choke and potentially aspirate my food into my lungs.
well everyone try to keep cool today!
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Just wanted to let you know that are thoughts and prayers are still with you and your family, Always remember that God is bigger than this disease. In the times when you feel like you can't..remember "He" can..I am a cancer survivor and I know first hand the power of God. I pray that God will build you and your family up in your most holy faith and strengthen you all. God Bless...
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