super hot day today!

what a hot day today!! this is the first time that i have found it very difficult to breath while working. I was fine in the air conditioning but the minute i stepped outside i lost my breath from the heat and humidity. i am totally exhausted.
Within the next few weeks i will finally be meeting with the lung transplant team at Beth Israel. My lung cd's have finally been received!
I have been trying to keep up with things at home. I have been pushing myself to the max. What took me only 2 hours to cut my lawn now takes about 6 because i try to rest in between. Mikey has been an unbelievable help to me. He is my little right hand man and i have been trying to teach him little things around the house. He has even been there to rescue me a few times during my choking spells. I'm not certain if i mentioned this earlier but the scleroderma has affected my swallowing and everytime i eat i have to keep something to drink close by otherwise i will choke and potentially aspirate my food into my lungs.
well everyone try to keep cool today!

Its been a while

Hi everyone! Just wanted to say hello and and give you some updates. It has been tough to continue my days normally with such a disappointment on my shoulders. After the news I came home, I went to go see my regular doctor, and they informed me that I should continue taking my pills and wait to see if anything else pops up...I'm in limbo right now. We are waiting for the cd's from my lungs to be mailed from Chicago back to my home doctors; I can not see a doctor here until they come. Any day now they should come in and I can go ahead with being evaluated for a lung transplant. It is still a major disappoint and there is still no cure. The only thing at this point that is aiding in my disease is my hot tub which allows me to emerge my body in water and aids in the pain. For everyone out there, there is still hope. Live long and live life to the max.