Hi everybody just wanted to update you on our soccer team. We finished winning the last 4 games in a row! making our record 5 wins and 3 loses. The kids achieved a lot and were playing super towards the end. couldn't ask for anything more. Our last game we won 3-0 and played great. I think this might be my last year coaching:( God speed.

Hello everybody today our soccer team won our 4th game. We're playing better than ever. I am so proud of our kids who have accomplished a successful year. The only thing that bothered me today was that the other teams kids did not shake our hands with sportsmanship. I can tell you that every game we played our kids have been respectful with taking a loss with a win, and I am so proud of them. God Speed.

Hey everybody just wanted to tell you about soccer. As of November 1st our soccer team is .500 and we've come a long way. I'm looking forward to my my appointment on December 2nd. It took about three weeks to get my blood work back. Which there three weeks behind ha ha... They just got back to me. God speed.

Fall

hey everybody its soccer season so I have been incredibly busy. I wanted to let everyone know that this will be my last year coaching soccer. So far the kids have been trying hard and it looks like it is going to be another great season. The other day I went to see the scleroderma specialist, however, I got the day of my appointment mixed up and they wouldn't see me. They scheduled a new appointment for December 2nd, my birthday! There has been no change in my condition, just that my hands have been hurts worse. I am still functionable and still getting around but I get tired easily from the disease progressing. God speed.

Soccer!

Hi everybody! It looks like summer is coming to a close and fall is making its way in. Soccer is approaching and I will be coaching in the fall. I have two appointments this week with the pulmonologist and the scleroderma specialist. I know everyone wants to hear from me

but sadly all the news has been disheartening. Due to everything that has occurred in life

I wish to inform everyone that I am trying to move forward and carrying for my children

is my number one priority. Lately, my hands have been getting worse and my chest has been

aching. I apologize for not writing but there isn't much to say. Please remember that

with everything that is occurring with my disease, moving forward in life is the only thing

that matters. Don't worry I won't wait so long to write to everyone :) God Speed.

super hot day today!

what a hot day today!! this is the first time that i have found it very difficult to breath while working. I was fine in the air conditioning but the minute i stepped outside i lost my breath from the heat and humidity. i am totally exhausted.
Within the next few weeks i will finally be meeting with the lung transplant team at Beth Israel. My lung cd's have finally been received!
I have been trying to keep up with things at home. I have been pushing myself to the max. What took me only 2 hours to cut my lawn now takes about 6 because i try to rest in between. Mikey has been an unbelievable help to me. He is my little right hand man and i have been trying to teach him little things around the house. He has even been there to rescue me a few times during my choking spells. I'm not certain if i mentioned this earlier but the scleroderma has affected my swallowing and everytime i eat i have to keep something to drink close by otherwise i will choke and potentially aspirate my food into my lungs.
well everyone try to keep cool today!

Its been a while

Hi everyone! Just wanted to say hello and and give you some updates. It has been tough to continue my days normally with such a disappointment on my shoulders. After the news I came home, I went to go see my regular doctor, and they informed me that I should continue taking my pills and wait to see if anything else pops up...I'm in limbo right now. We are waiting for the cd's from my lungs to be mailed from Chicago back to my home doctors; I can not see a doctor here until they come. Any day now they should come in and I can go ahead with being evaluated for a lung transplant. It is still a major disappoint and there is still no cure. The only thing at this point that is aiding in my disease is my hot tub which allows me to emerge my body in water and aids in the pain. For everyone out there, there is still hope. Live long and live life to the max.