Wednesday, April 8, 2009
April get warm!
Today was a good day. Donna made about a million phone calls and finally settled on a condo,the Oakwood apartments, a block from the hospital. We still haven't heard from our financial liaison, who will be fighting our insurance company for some sort of payment. We are supposed to know something in the next few weeks. My daughter's friend, our neighbor, started fundraising at her college, West Chester University. I was so humbled when she gave me an envelope donated by the students. Even though its April its still really cold here in Jersey, and it snowed today. It makes it very difficult for me to function fully with my hands because of my raynauds. Hopefully we will have nice weather for Easter.
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You go Mike! kick butt you can do it. This coming from someone who's known you and loved you for years.We are there for what ever we can do for you,Donna,and the kids. Penny and family.
ReplyDeleteI was diagnosed in 2006 with Systemic Scleroderma. I was able to get an appointment with Dr Wigley at the Johns Hopkins Scleroderma Center in Baltimore in Jan 2007. The scleroderma had advanced pretty quickly in that 1 year, I was put on Cellcept and I reacted very well. Minimal internal damage and minimal external damage.
ReplyDeleteI'm also in NJ and I wish you all the luck in the world. Fri/Sat is supposed to get nice out and I can't wait until it's 80 every day - come on heat!