Finally my deep dish Pizza!!

Hello all, well we have finally arrived here in Chicago where the weather was a cool 65degrees and sunny. A very big difference from the 80degree weather we are having in Flemington. Our flight was wonderful... except for the fact that they no longer give you a snack, not even a little bag of peanuts!! Well, that's our great economy I suppose.
I am happy to say that after our check in at the Seneca, we went to the famous Gino's East for a delicious deep dish pizza. Ahh, finally!! I have to say that it is very different than the deep dish pizza at pizza hut. The crust is unusually sweet and the mozzarella cheese is on the bottom of the pie not the top. It was fantastic!! Well, i am going to rest up tonight because tomorrow is a big day.

This is a test....This is only a test!!!.

Happy Memorial Day everyone! Well, it seems that I will be travelling back to the Windy city on May 31st for 4 more days of testing. It seems that my insurance company is requiring me to undergo several more tests before they give final approval for any type of payment. If you think that you have a full schedule, check mine out....
Monday June 1st..8:30 a.m. EKG. 10:00 a.m. Labs/Virologies. 12:15p.m. cardiac MRI with contrast. 4:00p.m. Dental Appointment for xrays and cleaning( no, they won't let Donna who is a Dental Hygienist, clean my teeth!).
Tuesday June 2nd..8:00 a.m. Adenosine Thallium Stress Test ( for my ticker).. 3:00 Vein Check ( for my port which will administer my chemo) .
Wednesday June 3rd.. Right heart Cardiac Cathetarization
Thursday June 4th.. 8:00 a.m. CT Enterography of abdomen and Chest, and Chest xray.
1:45 Consultation appointment with the Cardiology team.
Geez, I hope i get a chance to taste a Chicago deep dish pizza, but with this schedule I may have to settle for peanut butter and jelly!

Amanda's graduation from TCNJ

A very special moment with Nanny....
Me, my wife Donna, my son Michal, my daughter Amanda and mom
Congratulations Amanda!

A very Proud moment in my life....

Friday was the College graduation of my daughter, Amanda. She attended the College of New jersey. She graduated in the top 1/3 of her class! It is so hard to believe how quicky these 4 years have gone by. Other than witnessing her birth, this was the proudest moment of my life and I am so thankful that I was able to be there. It was certainly a day filled with Adams pride!!! I want to mention a very special person in my life and that is my mother in-law. Those of you who know her know how ill she has been over the years and yet she manages to always bounce back. Her reason for this, she tells me, is the love of her family - Even though she is in a rehab recovering from yet another illness, she managed to make it to the ceremony!! She is an amazing woman. I draw a lot of strength from her.
My Dr. started me on a new medication it is called Tracleer. This is supposed to help preserve my heart. My skin is starting to itch like crazy, but I don't think it's from the medication. I think my body is getting tighter. Donna bought a new cream that seems to be helping a little. Anyone have a back scratcher??

New News!

Today we heard from our insurance case manager as well as from Kristen, our Nurse coordinator at Northwestern( Let me just mention that Kristen is wonderful). It seems that our insurance company wants Northwestern to conduct further testing (exactly 12 more tests). They were very specific about the tests being performed by Northwestern only. Kristen told us that they usually either approve or deny payment for the transplant after the first 3 tests which i had already completed. What does this mean? We are headed back to Chicago for 5 more days of testing which means a further delay in my treatment. They may be slowing me down, but there is no stopping me- I'm a man on a mission I have a lot of living to do!!

Rainy Sunday....

Well, our soccer game was cancelled today because of the rain. This weather is really bad for my joints. The pain is sometimes unbearable. On a lighter note, our good friends Penny and Billy paid us a visit yesterday. We haven't seen them in a while and it was just so great to finally get together. Billy has now become a professional ATV rider! Penny has known Donna for almost 27 years now so I would have to say she is more like family. She and I could just sit for hours and just laugh and banter. Hopefully we will get in one more visit before I leave for Chicago. No news yet.....